Closed · RFA-DD-21-002 · CFDA 93.073 · Discretionary
Characterizing the Natural History of Fragile X Syndrome to Inform the Development of Intervention Outcome Measures
Federal grant opportunity posted by Centers for Disease Control and Prevention - ERA, cataloged on Grants.gov.
- up to $800K
- Award range
- Closed
- Status
- January 11, 2021
- Close date
- 1
- Expected awards
The verdict
Characterizing the Natural History of Fragile X Syndrome to Inform the Development of Intervention Outcome Measures is a closed discretionary listing from Centers for Disease Control and Prevention - ERA that offered Up to $800,000 across 1 expected award. Future funding cycles may be published under the same CFDA number. PlainGrants indexes 639 other opportunities from Centers for Disease Control and Prevention - ERA.
- up to $800K
- award range
- Closed
- application status
- 1
- expected award
- 93.073
- CFDA program
Archived opportunity record
Characterizing the Natural History of Fragile… is closed (last close January 11, 2021). Check the agency catalog for replacement NOFOs. Centers for Disease Control and Prevention - ERA still indexes 639 other opportunities here.
According to Grants.gov (extract vintage 2026-08-10), this record reflects the officially published listing. See methodology.
Deadline tracker
Application window closed
Closed January 11, 2021
Est. Total Funding
$4,000,000
Expected Awards
1
Instrument
Cooperative Agreement
Description
The purpose of this NOFO is to conduct research to better characterize the natural history of fragile X syndrome (FXS) and meaningful outcome measures in order to improve the lives of children and adolescents with FXS with and without autism spectrum disorder (ASD). The funding will support enrollment and in-person standardized assessments of individuals aged 6 through 19 years with full-mutation FXS, which can include new and previously enrolled study participants of the Fragile X Online Registry with Accessible Research Database (FORWARD). FORWARD is a national registry of patients enrolled in FXS specialty clinics who are part of the Fragile X Clinical and Research Consortium. Data collection will include assessments to characterize the cognitive, behavioral, and adaptive skills, and other indicators of functioning of individuals with FXS. Planned coordination of standardized in-person behavioral and functional assessments and follow-up telephone survey questionnaires with CDC’s Study to Explore Early Development (SEED) Follow-up Study (RFA-DD21-001) will facilitate comparison of health and functional outcomes for the FXS population with those for other related and frequently co-occurring conditions such as ASD and developmental delay. Applicants may propose recruiting study participants from an individual FORWARD clinic, or recruiting from a group of FORWARD clinics with which the principal investigator has documented data sharing and collaborative agreements.
Catch-all / unrestricted eligibility mark · RFA-DD-21-002
Grants.gov marks Characterizing the Natural History of Fragile… with a catch-all / unrestricted eligibility code (Unrestricted / see official listing). Read the official announcement text for the real applicant filter — the code alone is not a door list. The extract does not mark applicant cost-sharing as required. Instrument: Cooperative Agreement. Funding-activity code maps to Health (HL). 54 other Centers for Disease Control and Prevention - ERA listings share this eligibility-code string (8% of 640).
- Code 99
- Unrestricted / see official listing
Codes are Grants.gov eligibility category values from the extract vintage 2026-08-10. Confirm the full eligibility statement on the official listing or the Grants.gov eligibility reference.
Official Listing on Grants.gov
View full details, application forms, and submission instructions.
Agency Contact
Dionne Godette qal6@cdc.gov
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What to do next
Characterizing the Natural History of Fragile… is closed; use the parent program and agency catalog for the next funding cycle.
- Browse open federal opportunities in the same category when this listing is closed. Open opportunities
- Look up CFDA 93.073 across all indexed listings before you commit to this opportunity alone. Eligibility finder
- Compare award ranges across federal categories before you pick a single CFDA. All categories
Opportunity deadlines and eligibility change on Grants.gov; PlainGrants mirrors the extract and is not the submission system.
Disclaimer: This information is sourced from Grants.gov and SAM.gov and is for informational purposes only. Opportunity details, deadlines, and eligibility requirements change frequently. Always verify current information directly on Grants.gov before applying. PlainGrants is not affiliated with any federal agency.
Read our methodology - how this data is sourced, computed, and verified.
| Publisher | PlainGrants |
| Sources | the SAM.gov Assistance Listings and Grants.gov |