Closed · RFA-DD-21-002 · CFDA 93.073 · Discretionary
Characterizing the Natural History of Fragile X Syndrome to Inform the Development of Intervention Outcome Measures
Federal grant opportunity posted by Centers for Disease Control and Prevention - ERA, cataloged on Grants.gov.
- up to $800K
- Award range
- Closed
- Status
- January 11, 2021
- Close date
- 1
- Expected awards
The verdict
Characterizing the Natural History of Fragile X Syndrome to Inform the Development of Intervention Outcome Measures is a closed discretionary listing from Centers for Disease Control and Prevention - ERA that offered Up to $800,000 across 1 expected award. Future funding cycles may be published under the same CFDA number.
- up to $800K
- award range
- Closed
- application status
- 1
- expected award
- 93.073
- CFDA program
Opportunity snapshot. This Grants.gov announcement - Characterizing the Natural History of Fragile X Syndrome to Inform the Development of Intervention Outcome Measures - is cataloged under number RFA-DD-21-002 and tied to CFDA assistance listing 93.073, posted by Centers for Disease Control and Prevention - ERA. Grants.gov currently shows the opportunity as closed, first posted on November 5, 2020. The funding category is Discretionary, delivered as a cooperative agreement.
Award economics. The award range on file is Up to $800,000. The agency has projected $4.0 million in total estimated funding for this announcement. It expects to issue 1 award. If the agency funds the expected 1 award from the $4.0 million estimated pool, the average award works out to roughly $4.0 million. Cost sharing is not required, so applicants do not need to commit matching funds to be competitive on this opportunity. Federal award ranges are often upper bounds; actual allocations reflect program appropriations, the strength of the applicant pool, and the evaluation committee's scoring.
Deadline and action path. This opportunity closed on January 11, 2021. Future funding cycles may be published under the same CFDA number, so monitoring the parent program page is the most reliable way to catch re-announcements. Every Grants.gov submission requires an active SAM.gov registration and a Unique Entity ID. Review the Eligibility section below carefully, federal eligibility categories (nonprofit, state or local government, tribal, individual, educational institution, small business) have distinct registration and reporting requirements. Pre-application outreach to the listed agency contact is permitted and often welcomed, it helps clarify scope and scoring priorities. Before acting on the deadline or award figures above, verify them directly on the official Grants.gov listing, amendments can change dates and amounts after this page was last refreshed.
Award Range
Up to $800,000
Close Date
January 11, 2021
Electronically submitted applications must be submitted no later than 11:59 p.m., ET, on the listed application due date.
Posted
November 5, 2020
Est. Total Funding
$4,000,000
Expected Awards
1
Instrument
Cooperative Agreement
Description
The purpose of this NOFO is to conduct research to better characterize the natural history of fragile X syndrome (FXS) and meaningful outcome measures in order to improve the lives of children and adolescents with FXS with and without autism spectrum disorder (ASD). The funding will support enrollment and in-person standardized assessments of individuals aged 6 through 19 years with full-mutation FXS, which can include new and previously enrolled study participants of the Fragile X Online Registry with Accessible Research Database (FORWARD). FORWARD is a national registry of patients enrolled in FXS specialty clinics who are part of the Fragile X Clinical and Research Consortium. Data collection will include assessments to characterize the cognitive, behavioral, and adaptive skills, and other indicators of functioning of individuals with FXS. Planned coordination of standardized in-person behavioral and functional assessments and follow-up telephone survey questionnaires with CDC’s Study to Explore Early Development (SEED) Follow-up Study (RFA-DD21-001) will facilitate comparison of health and functional outcomes for the FXS population with those for other related and frequently co-occurring conditions such as ASD and developmental delay. Applicants may propose recruiting study participants from an individual FORWARD clinic, or recruiting from a group of FORWARD clinics with which the principal investigator has documented data sharing and collaborative agreements.
Eligibility
Grants.gov lists this opportunity under eligibility category code 99. These codes correspond to applicant types (state/local government, tribal organization, nonprofit, educational institution, individual, small business, etc.) defined in Grants.gov's own eligibility reference. See the current Grants.gov eligibility categories or check the official listing below for this opportunity's exact eligibility statement.
Official Listing on Grants.gov
View full details, application forms, and submission instructions.
Agency Contact
Dionne Godette qal6@cdc.gov
Key Dates
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| Sources | the SAM.gov Assistance Listings and Grants.gov |